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Old 06-22-2013, 03:43 AM   #1
tastroman OP
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Meniere's disease

A couple weeks ago I began having periodic bouts of severe vertigo a couple times a day and a persisting dizziness that just seems to hang around. The doctor has diagnosed me with Meniere's disease which is a chronic disease of the inner ear. Unless something changes, after 38 years on 2 wheels and 15 years of year round commuting on bikes, it appears I'm done. Just like that.
Anyone ever had Meniere's disease put an end to their riding or been able to manage symptoms enough to keep going.
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tastroman screwed with this post 06-22-2013 at 05:11 AM
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Old 06-22-2013, 03:57 AM   #2
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There was a video on here somewhere about two guys who had been riding/racing dirt for fifty years. One of them has Menieres and although there are days he has to not ride he was just hauling ass on the trails in the vid. Maybe some other inmate here can remember his name but he was damned impressive. It need not be the end.
Google "fifty years of kicks" a documentary on him.
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Old 06-22-2013, 04:06 AM   #3
tallbob
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Tim,

Sorry to hear that, hope you can get that under control.

No experience with Meniere's but I had similar symptoms which turned out to be a viral infection. I would see another doctor. Good luck.
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Old 06-22-2013, 04:10 AM   #4
dnrobertson
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Diagnosed a couple of months ago.

Just completed a two week 6000km ride in Australia.

I am lucky my attacks aren't as bad as yours and tend to happen at night or first thing in the morning. Second Sat on the trip I awoke and knew I was in trouble. Stayed in bed for an extra couple of hours and I then felt much better. You sound much worse then me.

Are you on medication? It's called Serc here in Australia. Meant to treat the problem in the inner ear. I have also found I need to reduce stress, reduce alcohol intake and get to bed early. Low sodium (of course, this is standard for Meniere's disease).

Good luck.
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Old 06-22-2013, 04:53 AM   #5
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Originally Posted by dnrobertson View Post
Diagnosed a couple of months ago.

Just completed a two week 6000km ride in Australia.

I am lucky my attacks aren't as bad as yours and tend to happen at night or first thing in the morning. Second Sat on the trip I awoke and knew I was in trouble. Stayed in bed for an extra couple of hours and I then felt much better. You sound much worse then me.

Are you on medication? It's called Serc here in Australia. Meant to treat the problem in the inner ear. I have also found I need to reduce stress, reduce alcohol intake and get to bed early. Low sodium (of course, this is standard for Meniere's disease).

Good luck.

My ENT has me on a Diuretic to help with fluid retention in the middle ear along with low sodium and cutting out caffeine and alcohol. I think I could ride with the dizziness but when the vertigo comes on I know I should not be on a bike and the problem is, I have no idea when it will hit. I've been having 0-4 episodes a day usually lasting less then a minute.
I am happy to read that you are still riding. Hopefully my symptoms will subside and I can get back out there.
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Old 06-22-2013, 06:13 AM   #6
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Quote:
Originally Posted by tastroman View Post
My ENT has me on a Diuretic to help with fluid retention in the middle ear along with low sodium and cutting out caffeine and alcohol. I think I could ride with the dizziness but when the vertigo comes on I know I should not be on a bike and the problem is, I have no idea when it will hit. I've been having 0-4 episodes a day usually lasting less then a minute.
I am happy to read that you are still riding. Hopefully my symptoms will subside and I can get back out there.
Although there is no heredity link (that my ENT knows of), my two brothers suffer from Meniere's as well. My older brother also gets no warning of his pending attacks.

I hope the medication and change in diet can control your symptoms. I know during my attacks, the only thing that helps is to close my eyes and try and get to sleep to relieve the symptoms.

All the best for you. It's not easy going low sodium is it?
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Old 06-22-2013, 08:44 AM   #7
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Check out this video about Epley Maneuvers to eliminate dizziness! It worked for me.

http://www.youtube.com/watch?v=ZqokxZRbJfw
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Old 06-22-2013, 09:37 AM   #8
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Tastroman,
I was diagnosed with meniers about 20 years ago. The doctor wanted to cut the nerve to one of the semicircular canals in each ear. This was going to eliminate one axis of my balance permanently. I did not have it done.

About 15 doctors later, it turns out about 3 suggested I was eating something I shouldn't be eating. Darn, I thought, I have a real problem and these quacks were trying to change my diet.

Long story short, and one more doctor, it was caused by food sensitivities. Change in diet and no more vertigo, dizziness, spins, headache. All gone. AND, I can bring it all back by eating the wrong stuff.

Wheat causes my problem. All I have to do is lay off ALL wheat and wheat products for about 10 days.
Sudefed would stop the vertigo and spins in about 15 minutes, gone, just that fast.
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Old 06-22-2013, 09:55 AM   #9
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Get a sidecar.
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Old 06-22-2013, 11:04 AM   #10
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Originally Posted by Twinz View Post
Check out this video about Epley Maneuvers to eliminate dizziness! It worked for me.

http://www.youtube.com/watch?v=ZqokxZRbJfw

I'm scheduled for PT in a couple weeks for this exact maneuver. I've tried it at home but maybe I'm not doing something right.
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Old 06-22-2013, 11:09 AM   #11
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[QUOTE It's not easy going low sodium is it?[/QUOTE]


I really don't even know where to start with it. This morning I went for a bagel only to find it was high in sodium.
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Old 06-22-2013, 11:19 AM   #12
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Originally Posted by damurph View Post
There was a video on here somewhere about two guys who had been riding/racing dirt for fifty years. One of them has Menieres and although there are days he has to not ride he was just hauling ass on the trails in the vid. Maybe some other inmate here can remember his name but he was damned impressive. It need not be the end.
Google "fifty years of kicks" a documentary on him.


Thanks for that. Nice video even if you don't care about Menieres.
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Old 06-23-2013, 02:54 AM   #13
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Originally Posted by tastroman View Post
Thanks for that. Nice video even if you don't care about Menieres.
Inspirational for sure. The point was that though adjustments need to be made in your life it need not be the end of riding. Every doctor I have questions whether I should be on two wheels (except for my Cardiologist) but I live my life according to my standards....not theirs.
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Old 06-23-2013, 07:56 AM   #14
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I have a brain condition the DRs thought was meneres until i went to a neurologist and had a MRI and a spinal tap. Still hasn't cleared up and I haven't done shit but fall over for the better part of 6-weeks. It's excruciating watching everyone have fun outside while a trip to the fridge is an adventure but they think they can fix it once all the test results come back. Long story short, go see a neurologist, and one of the DRs was I saw an avid outdoorsman with meneres so there is some hope. I guess it depends on what degree it affects you. If nothing else, sorry, this shit sucks.
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Old 06-23-2013, 08:33 AM   #15
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Yeah, a tag in a local tag game I play was dropped a few miles from where I live and it was disheartening not to be able to ride for such an easy grab. I live in a rural area with a lot of 1 and 2 lane roads so until my vertigo episodes diminish, or until I get my 14 year old through college (whichever comes 1st) I'm parked.
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