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Old 06-25-2013, 06:53 AM   #16
Pantah
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I think you need more opinions. I get vertigo once/twice per year. Usually late winter. I notice it coming on when waking up and rolling over. I get the spins. I have fallen right on my face bending over to tie my shoes. I've had to grab desks and the walls when walking to the mens room in my office.

I could tell it was an inner ear thing/sinus thing, but I went to the doc anyway. She gave me something called IC Meclizine, which is a tiny pill. I am to take one or two 3x per day. It clears it up and after a couple days it does away.

When I have these spells I don't ride or even drive. But I can walk to my office so no biggie. This has been going on periodically for about 5 years. Flu season.
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Old 06-25-2013, 01:02 PM   #17
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Quote:
Originally Posted by Pantah View Post
I think you need more opinions. I get vertigo once/twice per year. Usually late winter. I notice it coming on when waking up and rolling over. I get the spins. I have fallen right on my face bending over to tie my shoes. I've had to grab desks and the walls when walking to the mens room in my office.

I could tell it was an inner ear thing/sinus thing, but I went to the doc anyway. She gave me something called IC Meclizine, which is a tiny pill. I am to take one or two 3x per day. It clears it up and after a couple days it does away.

When I have these spells I don't ride or even drive. But I can walk to my office so no biggie. This has been going on periodically for about 5 years. Flu season.

I'm going to see a inner ear specialist at the end of July. (The earliest I could get in) This has been going on 3 weeks straight for me and the ENT says he see's no sign of infection, he tried a steroid shot and a Diuretic but neither helped. Head and sinus CT were negative. The longer this continues the more it's looking like Meneries which seems to be a diagnosis based mainly on symptoms.
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Old 06-26-2013, 06:04 PM   #18
ossamon
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Meniere's disease

I have dealt with Meniere's for 20+ years. My version is now controlled with acyclovir. Short of an operation, I have tried most of the remedies. Unfortunately, Meniere's is diagnosed for a wide variety of symptoms, and what cures one person does not work on another. I urge you to check out the forum (message boards) at http://www.menieres.org/. There's a wealth of info there. Educate yourself before seeing a doc, and make sure the doc has successfully treated Meniere's patients. Some ENTs are not up to speed on the latest treatments. Good luck.
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Old 06-27-2013, 04:53 AM   #19
foxtrapper
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My world routinely spins and slides off sideways. Never been diagnosed with Meniere's disease, but others in my family enjoy it.

There are times I cannot ride, or even figure out how to stand up, but overall, I usually can. I've learned to pretty much ignore what my ears are telling me, and use my eyes to orient with. Does make walking or riding in the pitch black kinda tricky.

I've learned many of my triggers, and what cures and crutches work reasonably well for me. Dark roast coffee for example just about guarantees screaming ears and a wildly spinning world (and it's not the caffeine, seems to be the oils of dark roasting). Good old dramamine generally muffles things enough for me to deal with riding or a day at the beach (waves wreak havoc otherwise).

Worse comes to worse, there are trikes and sidecars, or even sportscars. There are atvs and Jeeps. There are even landing gears for bikes (I used to make some myself, many years ago).

Ug, fun typing this because it has me thinking about it. So now I can really hear my ears screaming and feel the spinning. Time to go do something else and distract myself.
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Old 06-27-2013, 10:47 AM   #20
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Give it some time.

My mother is almost completely debilitated by it, has had inner ear surgeries and is on meds for it.

I had a bad bout of it for a few months 2 years ago.
Given my mothers record it scared the crap out of me.
I thought my riding days were over.
Mine eventually subsided and for the most part has went away or I have learned to compensate.

My wife just went through it, its been about 2 months now, but her's is going away too.

I do wonder if it could be food (coffee) related as suggested.
My wife had swapped to decaf around the time her's started and I swore that was part of it.
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Old 07-01-2013, 01:29 PM   #21
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A good friend who rides was having bouts of vertigo as well, and after a bunch of tests was also diagnosed with Meniere's disease.

He did a bunch of research, and eliminated Gluten from his diet. Within a week of being Gluten free, his symptoms went away and so far have stayed away.

Francois
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Old 07-01-2013, 04:25 PM   #22
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+1 on all the calls for a 2nd opinion. I had symptoms like Meniere's off and on for several years, where the room would start acting like a Ferris wheel or start doing barrel rolls. After extensive (and very nasty) tests, it got diagnosed was Benign Positional Vertigo. "Benign", my a$$ - one time the room spun so bad I hyperventilated, got numb in the extremities, and was taken to the ER with a "potential stroke". At age 23. Another time I started spinning while I was driving (the car). Fortunately I was on the flat, straight I-80 in Iowa at the time so I just kept the controls straight and did fine. For about 10 yrs I ALWAYS had meclizine handy.

The good news was that it pretty much went away by itself - I haven't had a bad attack since about 1993. I make sure I keep well hydrated to keep the inner ear fluid in balance, and I don't go on amusement park rides or do anything that involves spinning. So there's hope. Good luck.

-ThosMa

Edit - Re Gap's post. Funny thing; Years after my inner symptoms settled down I got diagnosed with celiac, and went gluten-free.
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Old 07-01-2013, 08:34 PM   #23
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Cool2

I had a series of similar attacks at the beginning of this year.
My doctor did not arrive to such diagnostic, but I kept riding and it has gotten much better by itself and with regular physical exercise.

Hope yours is not as serious as diagnosed and that you feel better as well, tastroman.

Otherwise, I would consider a side car or trike.
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Old 07-01-2013, 08:50 PM   #24
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One of our Wellington riders in his 60's has had Meniers for a few years and is still riding so it's possible for some. He's an inmate here too so I'll make sure he see's this thread and can contibute if sees fit.

I've been going through similiar issues recently and my Dr is angling towards it being BPPV which causes very similiar effects. I'm waiting on more tests at the moment.

http://en.wikipedia.org/wiki/BPPV
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Old 07-02-2013, 02:50 AM   #25
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Quote:
Originally Posted by Eddieb View Post
One of our Wellington riders in his 60's has had Meniers for a few years and is still riding so it's possible for some. He's an inmate here too so I'll make sure he see's this thread and can contibute if sees fit.
Well Eddie is a pal of mine - riding with him keeps me young at 65

As Eddie has said I suffer from attacks of vertigo that can be debilitating. I currently medicate on 16mg per day of SERC http://www.news-medical.net/drugs/Serc.aspx following a major episode which saw me hospitalised for a night whilst travelling in Europe in late 2007.

My experiences with attacks of vertigo began in the mid '80's. Initially my spins lasted only a short time and had me holding on to my chair or clutching a desk. In 2000 I had a major spin whilst motorcycling - it began as I looked up on leaving a small stream crossing and got progressively worse over 10km where I stopped the bike - and literally slid to the ground. My wife had to come and pick me up in the car - during this and subsequent attacks - feeling hot and vomiting whilst the whole world is rotating has been a common experience.

Coupled with the spins in my case has been hearing loss - significant in my right ear and lesser in my left - talking in a social setting is really hard.

I find triggers for me are Stress, Excessive Caffeine, alcohol and salt.

For me the attacks are far less frequent and with the SERC I'm able to lead a normal life. Keeping up on one's sleep is also a necessity I find.

Other's have commented that Meniere's is difficult to diagnose and tends to be applied to a lot of conditions to do with the inner ear - that's been my experience aslo

Someone has already referred to the Meniere's Support Group - I have found this helpful in times past http://www.menieres.org/

best wishes Aslan
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Old 07-02-2013, 01:43 PM   #26
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Thanks for all of the replies. Currently my episodes of vertigo seem to last from 5-20 seconds although I stay dizzy between episodes of vertigo. I have read that with Menieres, the vertigo attacks usually last from minutes to hours. So I'm wondering, those of you who do have Menieres, how long to your bouts of vertigo typically last?
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Old 07-02-2013, 08:48 PM   #27
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Also research labyrinthitis. If your ENT determines you have this, do not despair. Instead, become religious about your exercises.
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Old 07-02-2013, 11:43 PM   #28
Oaters
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Quote:
Originally Posted by tastroman View Post
Thanks for all of the replies. Currently my episodes of vertigo seem to last from 5-20 seconds although I stay dizzy between episodes of vertigo. I have read that with Menieres, the vertigo attacks usually last from minutes to hours. So I'm wondering, those of you who do have Menieres, how long to your bouts of vertigo typically last?
In my case - when I have a severe attack - hours - like overnight - retiring to bed is my only option - however, with SERC and care on the sleep, stress,caffeine, salt and alcohol the attacks are very infrequent - last one 2011 if I recall correctly. I went for 15 years before they became debilitating with steadily deteriorating loss of hearing in my right ear.

Best wishes
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Old 07-03-2013, 02:24 PM   #29
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The first astronaut Alan B. Shephard was diagnosed with it. After then experimental surgery he went to the moon. So there is hope. Best wishes.
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Old 07-04-2013, 10:55 AM   #30
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I have great sympathy for such a chronic problem. Once 40 years ago as a 17 year old, I was riding across a bridge with a steel superstructure and had the terrifyingly real impression that the bridge rotated 90 degrees and I was riding on the side like a wall of death for about 10 seconds. I just held everything steady and it came back but panic was not far behind. Never another problem, mever understood what happened. Very dream like.

Many on this board suffer from manures disease but that is a different problem :)

Lee
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