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Old 07-04-2013, 11:51 AM   #31
PSS
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Location: College Place, WA
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Meniere's disease

My wife who rides a little came down with Meniere's in late April. It just came out of nowhere, featuring vertigo and severe vomiting. She thought it was benign positional vertigo but finally went to her ENT doc who diagnosed it as Meniere's. Said that the Epley does no good which my wife agreed with since that is what she and a physical therapist had first tried She works as a personal fitness trainer so it effected her work. Like someone else said, give it some time and watch what you eat; the wife's is about 95% improved now and she's nearly back to normal with no medication. Just watching her diet and the salt content of food more than she used to. Best of luck in dealing with it.
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Old 07-05-2013, 06:00 PM   #32
injun
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mine is from a real bad crash not the disease I had to learn not to trust my ears and not to fly any more sever spins and vomiting, these days I learn to balance my shoulder muscles and that helps but their are some days when I don't ride, getting old is an adventure!
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Old 07-08-2013, 01:56 PM   #33
SigepKat
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I've dealt w/Meniere's for about 3-4 years...I've been on acyclovir (helped), pregnenolone (helps control inflammation, helped), another antiviral (can't remember the name, also helped), and a monthly steroid shot. I started allergy shots (allergies have always been a problem) about two months ago and I've had no symptoms since then. My first ENT told me that the best I could hope for was slow hearing loss and eventually feeling dizzy all the time, that was the last time I saw him. My current ENT has tried something new every time the previous remedy quit working, so I would strongly recommend a second opinion. Don't give up on riding unless it doesn't feel safe.

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Old 07-17-2013, 07:05 PM   #34
superkram
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I'm a deaf rider and use sign language. Have dealt with periodic episodes of vertigo dizziness since I was 23 (I'm 36 now) with varying degrees of frequency & duration. As someone mentioned, severe spins while feeling hot and vomiting are the worst.

Mine can come any time, but I can keep things in check by being careful with caffeine, avoiding fast food, managing stress, giving myself plenty of outs, and most importantly, alcohol. When I quit drinking & got sober 7 years ago, I was amazed how my vertigo immediately dropped to almost nothing. Don't waste your time around negative people or situations. Treat yourself well & congratulate yourself for any small minor good things you do.

Part of it could be psychological, as getting sober allowed me to deal with a bunch of inner issues, and thereby reducing overall stress levels from knowing I wasn't hitting the bottle to avoid other problems. On the other hand, I wasn't dealing with hangovers, and a lot of alcohol does involve grain hops (gluten source?) as I was mostly a beer & mixed drinks guy, not a wine person.

While I got sober for myself, I have to admit the huge reduction in vertigo definitely helped me stay sober in my early sobriety. Hey, if that's a blessing in disguise, I'll take it!

Obviously, I don't ride if I have the spins. However, I've taken plenty of long trips (12K avg/yr) and know myself enough to plan routes that give me flexibility if vertigo hits me, and make sure I give myself plenty of time for rest if I start feeling iffy. I keep meclizine & ativan handy, and take as needed, but usually don't need it while riding.

No shame in keeping a credit card handy & checking into a motel earlier than planned while on the road. I haven't camped while on the foad yet, curious how that will work out. Just having mental "outs" actually takes the edge off and lets me focus on the riding, including an awesome FL-CA-FL ride over 17 days on the FJR last Xmas.

Good luck to everyone! Just do the next right thing after the next right thing, and eventually the tide shifts back in your favor.
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Old 07-18-2013, 01:52 PM   #35
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Quote:
Originally Posted by superkram View Post
I'm a deaf rider and use sign language. Have dealt with periodic episodes of vertigo dizziness since I was 23 (I'm 36 now) with varying degrees of frequency & duration. As someone mentioned, severe spins while feeling hot and vomiting are the worst.

Mine can come any time, but I can keep things in check by being careful with caffeine, avoiding fast food, managing stress, giving myself plenty of outs, and most importantly, alcohol. When I quit drinking & got sober 7 years ago, I was amazed how my vertigo immediately dropped to almost nothing. Don't waste your time around negative people or situations. Treat yourself well & congratulate yourself for any small minor good things you do.

Part of it could be psychological, as getting sober allowed me to deal with a bunch of inner issues, and thereby reducing overall stress levels from knowing I wasn't hitting the bottle to avoid other problems. On the other hand, I wasn't dealing with hangovers, and a lot of alcohol does involve grain hops (gluten source?) as I was mostly a beer & mixed drinks guy, not a wine person.

While I got sober for myself, I have to admit the huge reduction in vertigo definitely helped me stay sober in my early sobriety. Hey, if that's a blessing in disguise, I'll take it!

Obviously, I don't ride if I have the spins. However, I've taken plenty of long trips (12K avg/yr) and know myself enough to plan routes that give me flexibility if vertigo hits me, and make sure I give myself plenty of time for rest if I start feeling iffy. I keep meclizine & ativan handy, and take as needed, but usually don't need it while riding.

No shame in keeping a credit card handy & checking into a motel earlier than planned while on the road. I haven't camped while on the foad yet, curious how that will work out. Just having mental "outs" actually takes the edge off and lets me focus on the riding, including an awesome FL-CA-FL ride over 17 days on the FJR last Xmas.

Good luck to everyone! Just do the next right thing after the next right thing, and eventually the tide shifts back in your favor.

Thanks for that. I've been feeling pretty crappy as I'm sure everyone does when they faced the reality that they have a chronic condition with no cure so there is no going back. I've been entertaining the idea of selling my Buell (the only new bike I've ever purchased) but with that would also go the admission that I've sort given up 2 months into dealing with this crap. Currently I kind of look at it like I'm going down a road that's deteriorating with no option of turning around, ever. And when looking to my future I'm having trouble envisioning those good times ahead. As crappy as Menieres disease is I almost feel guilty for never having heard of it before getting it.
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Old 07-21-2013, 05:04 AM   #36
Mattbastard
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My first snap with Vertigo was when I was in college. I had a bit of a hangover and slept in a really warm room that night. When I woke up I was lying on my stomach but facing left. I shifted from left to right when the room started spinning, BAD! I sat up and it felt like I had the bed spins. Started cold sweating, freaking out a little, then it calmed down and I went home. Doc said BPPV, caused by little mineral crystals forming and rattling around in the part of my ear that controls the feel of position. He said, "similar to kidney stones". This gave me closure, but no cure.

Then I did my own troubleshooting. If kidney stones are prevented by staying properly hydrated, I'll give it a shot. I noticed my spins were usually more pronounced during hangovers, so I started pushing water. Not soda, coffee, beer, but WATER. Low and behold, it worked. Now (about 10 years later) if I start feeling dizzy or like my balance isn't all there I have a big glass of water or two. I've started putting in those low calorie flavor packs to help.

Good luck. This ailment sucks.
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